Getting used to her Spectacles

Bethany was diagnosed with strabismus and far sidedness.  It is rare that she is smiling while she has her glasses on.  She doesn't like them that much.  But, she is starting to get used to them.

Bethany update

On August 15th, Bethany had another procedure done on her airway.  The Dr. put a scope down her trachea.  The airway was mostly open.  Unfortunately, vocal chords were stuck together.  This can be caused by GERD (acid reflux).  But, the Dr. was hopefull that we are on our way to decannulation!  If the airway stays open and the vocal chords don't block it, then plunk!  Out comes the trach!
Bethany was weighed and measured today.  She is growing good, but we still would like her to gain more weight and have some catch up growth.  She is weighing in at 11lbs 10oz and is 7 1/2 months old! So we are increasing her calories.  She is getting stronger and taking tastes of food.
She still continues to have an oral aversion and swallowing problem.  But, we are working hard on it everyday!  Through all of this Bethany continues to be a patient, happy baby.  She smiles all the time and melts our everyday! 

Last days of Summer

 Wearing overalls for the first time!

 Bethany Sporting the Pigtails!

 Rockin Away!

 Guarding the homestead!

Enjoying Nature!

7 months old today!!

A year and a week ago, (Aug. 1, 2011) we first found out we were having Twins!! It was shocking and so exciting!  We had so much fun telling all of you our wonderful news!

Here are the Girls' 6 months pictures:

 Alexa Grace

 Bethany Kristine

 Sisters. . . . . telling secrets!

Outfits provided by Aunt Shanni:)

Together Again

 Twins, Sisters, Friends....

Enjoying the summer from our deck!

Thanks Aunt Dana for the dresses!

Two more surgeries

On May 30th Bethany went to the Doctor with Respiratory Distress.  They immediately admitted us to Pullman Regional Hospital.  After chest x-rays and breathing treatments, she wasn't getting any better.  So Bethany and I took a ride in the ambulance up to Sacred Heart in Spokane.  She was stabilized and we waited for the weekend to get over so we could have the E,N,T, Dr. look at her upper airway.  The Dr. did a scope down Bethany's trachea and couldn't get passed her small airway that had mucous cysts down it.  So she did a tracheotomy. 
Bethany could finally breath easy.  She also had a better chance of gaining weight instead of burning calories breathing.  She had a hard time figuring out why she couldn't hear herself make sounds or cry. 
Five days after her trach surgery, she had a fundo plication done.  This surgery is where they take a part of her stomach and wrap it around the sphincter on the esophagus.  This makes it so she cannot vomit when she refluxes.  We stayed in the hospital for another week with a total of a 3 week hospitalization.  We were glad to get home, but nervous about all of the trach care.  We added 4 new machines to Bethany's equipment.  And a lot of medical supplies. The first few weeks were a challenge, but we made it through with a lot of help. Namely, my mom, Kris Sommers, Megan Sanchagrin (our new live in nanny, who is a junior in college), Melissa Williams, Laura Barrett, Jana Porter, and Michelle Hyatt.  They all helped out with Bethany and Alexa.  There were many more who brought meals and took care of the other kids.  We have been so blessed by so many wonderful people.  It sure makes the burden lighter! Thank you all for the prayers and help you've given us!

It's been almost 2 months since her hospitalization and she is coming along. She has gained over 2 pounds since then and is getting stronger everyday!  Unfortunately, she has an oral aversion and isn't swallowing or taking any food by mouth presently.  The surgeries have made her cautious of her airway.  So we are doing therapy to help with all that.  She has had two more procedures since her hospitalization.  The Ear, Nose, and Throat Dr. has dilated her airway to try and flatten the mucous cysts.  Her next procedure is Aug. 15th.  So hopefully when the Dr. uses the scope, she'll find the airway clear!  If the airway is clear, she will probably leave the trach in for a few more months to make sure.  We can't take it out anyway until Bethany can swallow and allow things in her mouth again. 
The next pictures you'll see of Bethany will be with glasses.  The last appointment we had to do after the NICU was an eye check-up.  Bethany is very far-sighted and requires glasses right away.  We just hope Alexa won't pull them off of her face!